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NHS Sickle Cell and Thalassaemia Screening Programme

Thank you for all of your hard work this year

Professor Anne Mackie reflects on the hard work and achievements of everyone involved in screening during 2017.

We’ve updated sickle cell and thalassaemia screening guidelines for counselling and referral for prenatal diagnosis

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We have updated our national guidance on counselling and referral for prenatal diagnosis for women and couples at risk of having a baby with sickle cell disease or thalassaemia major.

Parents’ stories: personal experiences of sickle cell and thalassaemia screening

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As part of a wider investigation into why women are tested late, we commissioned the UK Thalassaemia Society (UKTS) and Sickle Cell Society (SCS) to carry out face to face interviews with women and couples who had recent experience of the SCT programme.

Revamped sickle cell and thalassaemia ‘at risk’ leaflets published

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I’m the Sickle Cell and Thalassaemia Screening Lead at Northampton General Hospital and Kettering General Hospital. For the past year I’ve been on secondment as national project lead for the NHS Sickle Cell and Thalassaemia (SCT) Screening Programme.

Screening key performance indicators: quarter 4 2016 to 2017 data published

We’ve now published the screening key performance indicator (KPI) data for the fourth quarter of 2016 to 2017 (Q4, January to March 2017). The KPIs are used to measure how NHS screening programmes are performing and aim to give a high level overview of programme quality.