Newborn screening laboratories have started to use a new IT system that provides oversight of screen-positive babies from screening to specialist care.
Princess Royal University Hospital, in Kent, has made a very simple change that is having a big impact on improving early access to sickle cell and thalassaemia screening.
We have updated the sickle cell and thalassaemia (SCT) screening handbook on GOV.UK.
We are developing a new IT system that will make the process of collecting and sharing data easier and better.
The sickle cell and thalassaemia data collection and performance analysis report for 1 April 2016 to 31 March 2017 is out now.
Early access to sickle cell and thalassaemia screening and the early offer of prenatal diagnosis (PND) is important in giving women and couples time to consider their options.
This study day is for non specialist nurses, midwives and health visitors working in SCT screening in England. Accredited by the Royal College of Midwives, I am pleased to say we are able to provide funding for eligible participants.
As part of a wider investigation into why women are tested late, we commissioned the UK Thalassaemia Society (UKTS) and Sickle Cell Society (SCS) to carry out face to face interviews with women and couples who had recent experience of the SCT programme.
Are you involved in antenatal sickle cell and thalassaemia (SCT) screening? Do you counsel women and couples at risk of having a baby with a significant haemoglobin disorder? Are you aware of all the resources available to support your counselling?
Over the past few months, the NHS Sickle Cell and Thalassaemia (SCT) Screening Programme has consulted widely with colleagues from a range of services, including midwifery, specialist nurses and clinicians, screening laboratories, and patient organisations to help us revise and …