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Head and shoulders photo of Cathy Coppinger

Cathy Coppinger

Cathy was the national programme manager of the NHS Sickle Cell and Thalassaemia Screening Programme before retiring in summer 2019.

Parents’ stories: personal experiences of sickle cell and thalassaemia screening

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As part of a wider investigation into why women are tested late, we commissioned the UK Thalassaemia Society (UKTS) and Sickle Cell Society (SCS) to carry out face to face interviews with women and couples who had recent experience of the SCT programme.

Can you help us make our sickle cell and thalassaemia ‘at risk’ leaflets better?

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Are you involved in antenatal sickle cell and thalassaemia (SCT) screening? Do you counsel women and couples at risk of having a baby with a significant haemoglobin disorder? Are you aware of all the resources available to support your counselling?