Local screening coordinator praises sickle cell and thalassaemia genetic risk and counselling course. Bursaries are available for the next course in 2018.
NHS Sickle Cell and Thalassaemia Screening Programme
We have launched a period of consultation on the draft NHS Sickle Cell and Thalassaemia Screening Programme handbook.
We have updated our national guidance on counselling and referral for prenatal diagnosis for women and couples at risk of having a baby with sickle cell disease or thalassaemia major.
Early access to sickle cell and thalassaemia screening and the early offer of prenatal diagnosis (PND) is important in giving women and couples time to consider their options.
We’re pleased to announce the publication of an updated version of the antenatal laboratory handbook for the NHS Sickle Cell and Thalassaemia (SCT) Screening Programme.
This study day is for non specialist nurses, midwives and health visitors working in SCT screening in England. Accredited by the Royal College of Midwives, I am pleased to say we are able to provide funding for eligible participants.
As part of a wider investigation into why women are tested late, we commissioned the UK Thalassaemia Society (UKTS) and Sickle Cell Society (SCS) to carry out face to face interviews with women and couples who had recent experience of the SCT programme.
I’m the Sickle Cell and Thalassaemia Screening Lead at Northampton General Hospital and Kettering General Hospital. For the past year I’ve been on secondment as national project lead for the NHS Sickle Cell and Thalassaemia (SCT) Screening Programme.
We’ve now published the screening key performance indicator (KPI) data for the fourth quarter of 2016 to 2017 (Q4, January to March 2017). The KPIs are used to measure how NHS screening programmes are performing and aim to give a high level overview of programme quality.
NHS England has published the 2017-18 service specifications for all 11 NHS Screening Programmes. The specifications accompany the 2017-18 agreement that outlines how NHS England commissions certain public health services under section 7A of the National Health Service Act 2006.