Details of the February 2019 changes and improvements to the sickle cell and thalassaemia screening family origin questionnaire.
NHS Sickle Cell and Thalassaemia Screening Programme
We have updated the national standards for the NHS Sickle Cell and Thalassaemia (SCT) Screening Programme.
The national antenatal screening team travelled across the country to deliver data workshops to give screening providers guidance on the submission of complete and accurate screening standards and key performance indicator data.
Newborn screening laboratories have started to use a new IT system that provides oversight of screen-positive babies from screening to specialist care.
We have published the annual screening data for the key performance indicators (KPIs) for the 2017 to 2018 screening year (1 April 2017 to 31 March 2018).
We have a published a new online version of our resource cards, giving information about screening offered in pregnancy and to babies.
Screening midwives and senior nurses looking to expand their knowledge may want to register for the next Gateway to Genetic Counselling course, part of the Cambridge Genomic Medicine Programme.
The Royal College of GPs (RCGP) has published new e-learning content, in conjunction with PHE Screening, that gives GPs and primary care colleagues practical guidance to support patients in understanding and accessing the NHS screening programmes.
Public Health England has published new data measuring how the 11 NHS screening programmes are performing.
Project lead Robyn Parsons explains how the UK National Haemoglobinopathy Reference Laboratory in Oxford has provided a dedicated sickle cell and thalassaemia laboratory support service for antenatal and newborn laboratories and other healthcare professionals involved in the NHS SCT Screening Programme since 2010.