GOV.UK
New dates for free NHS Sickle Cell and Thalassaemia Screening Programme updates
Details of 2 upcoming free courses run by King's College London for colleagues working in sickle cell and thalassaemia screening.
NHS Sickle Cell and Thalassaemia Screening Programme
Screening’s partnership work with Sickle Cell Society benefits people with sickle cell disorders
Find out how the Sickle Cell Society's successful partnership work with the NHS Sickle Cell and Thalassaemia Screening Programme makes a difference to the lives of people who live with sickle cell disorders and their families.
New guides for sickle cell and thalassaemia screening IT system
A new set of guides for users of the sickle cell and thalassaemia (SCT) newborn outcomes IT system have just been published.
Moving antenatal and newborn screening information into the digital age
Public Health England, NHS England and NHS Digital have begun an ongoing collaboration to move from printed invitation leaflets to online information, starting with antenatal and newborn screening.
We’re updating the clinical care standards for children with sickle cell disease and want your views
We are working with the Sickle Cell Society to update the Sickle Cell Disease in Childhood: Standards and guidelines for clinical care 2nd edition. Please let us know what you think of the clinical care standards.
Application for funded place on genetic risk assessment and counselling course is now open!
The NHS Sickle Cell and Thalassaemia Screening Programme is excited to offer 25 funded places on the King’s College London Genetic Risk Assessment and Counselling course. This year the 4-day course takes place on 9 May, 10 May, 13 June and 14 June 2019.
We’ve made changes to the family origin questionnaire (FOQ)
Details of the February 2019 changes and improvements to the sickle cell and thalassaemia screening family origin questionnaire.
Updated standards published for sickle cell and thalassaemia screening
We have updated the national standards for the NHS Sickle Cell and Thalassaemia (SCT) Screening Programme.
Workshops have positive impact on antenatal screening data
The national antenatal screening team travelled across the country to deliver data workshops to give screening providers guidance on the submission of complete and accurate screening standards and key performance indicator data.
Roll-out of IT system to collect newborn outcome data begins in earnest
Newborn screening laboratories have started to use a new IT system that provides oversight of screen-positive babies from screening to specialist care.