We have updated and published in accessible digital format the national NHS Sickle Cell and Thalassaemia (SCT) Screening Programme information about being a carrier of a sickle cell, thalassamia or other unusual haemoglobin gene. These digital leaflets provide pregnant women …
Siobhan started working for the NHS Screening Programmes in 2001 on the implementation of newborn hearing screening. She has had a variety of roles, mostly those requiring scientific or technical expertise. In 2015 she joined the NHS Sickle Cell and Thalassaemia Screening Programme. She started her career as an audiologist but went on to do a masters in biophysics and later a PhD in auditory biophysics. She now supports researchers by coordinating their requests to access screening data and provides the secretariat for research advisory committees. Her interests include cycle touring and hiking.
We have published new national guidance on GOV.UK that explains the process for policy makers and researchers who want to access screening data to explore new tests, treatments and theories.
The NHS Sickle Cell and Thalassaemia (SCT) Programme endorses short counselling courses for health professionals who care for families affected by the 2 conditions.
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The PHE Screening team
Public Health England (PHE) provides support and advice to the NHS-led national screening programmes. These programmes identify apparently healthy people who may be at increased risk of a disease or condition, enabling earlier treatment and informed decisions.
Find out more about PHE Screening and this blog.
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