We are looking for people to represent the public and patient voice on the NHS antenatal and newborn (ANNB) screening programmes research advisory committee (RAC).
The committee reviews applications to carry out research involving NHS screening programme participants, or requiring access to screening data or samples. It considers the risks and benefits of each research proposal for the screening programme and participants, as well as the public interest in carrying out the study. Based on this assessment, the RAC decides whether to support the research.
To make sure any research in the NHS screening programmes benefits patients and the public, it is important for them to be involved and represented in these decisions. Lay committee members give their opinion on whether the research would be acceptable to screening programme participants, and if the information provided to them is easy to understand.
Lay member applicants must live in England. The ideal person would have:
- an interest in ANNB screening programmes
- good communications skills, enthusiasm and reliability
- access to appropriate technology (such as a computer or tablet) for emails and remote meetings
An understanding of health research and ethics, and experience of reading scientific papers, would also be useful. Do not worry if you do not have experience of all these things, though, as we’ll provide support to help new lay members undertake their role.
Meetings take place 4 times per year and are currently held using Microsoft Teams.
In the future, there may be face-to-face meetings and any travel costs and expenses would be reimbursed.
More information, including how to apply, is available in the full advert. The closing date for applications is 28 July 2021.
Please contact firstname.lastname@example.org if you have any questions.
PHE Screening blog
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