Latest data from the National Congenital Anomaly and Rare Disease Registration Service

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A nurse putting a newborn baby into a cot in a hospital ward

On 3 March 2019, over 150 organisations worldwide marked the fifth annual World Birth Defects Day. The goals for the day are to raise awareness across the globe about congenital conditions, look for opportunities to prevent conditions developing, and support antenatal testing where this is a result of an informed choice.

We’re updating the clinical care standards for children with sickle cell disease and want your views

Posted by: , Posted on: - Categories: NHS Sickle Cell and Thalassaemia Screening Programme
A black woman and her 2 children on the cover of the sickle cell disease in childhood standards from 2010 with the words 'we want your views on the clinical care standards' on a purple background

We are working with the Sickle Cell Society to update the Sickle Cell Disease in Childhood: Standards and guidelines for clinical care 2nd edition. Please let us know what you think of the clinical care standards.

Application for funded place on genetic risk assessment and counselling course is now open!

Posted by: , Posted on: - Categories: NHS Sickle Cell and Thalassaemia Screening Programme
The outside of one of the buildings of King's College London

The NHS Sickle Cell and Thalassaemia Screening Programme is excited to offer 25 funded places on the King’s College London Genetic Risk Assessment and Counselling course. This year the 4-day course takes place on 9 May, 10 May, 13 June and 14 June 2019.