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Parents’ stories: personal experiences of sickle cell and thalassaemia screening

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As part of a wider investigation into why women are tested late, we commissioned the UK Thalassaemia Society (UKTS) and Sickle Cell Society (SCS) to carry out face to face interviews with women and couples who had recent experience of the SCT programme.

Revamped sickle cell and thalassaemia ‘at risk’ leaflets published

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I’m the Sickle Cell and Thalassaemia Screening Lead at Northampton General Hospital and Kettering General Hospital. For the past year I’ve been on secondment as national project lead for the NHS Sickle Cell and Thalassaemia (SCT) Screening Programme.

2017 to 2018 screening service specifications: the main changes

NHS England has published the 2017-18 service specifications for all 11 NHS Screening Programmes. The specifications accompany the 2017-18 agreement that outlines how NHS England commissions certain public health services under section 7A of the National Health Service Act 2006.