Alison is a trustee of the charity SOFT UK, which supports families affected by Trisomy 13 and Trisomy 18. Her daughter Isabel, now 8 years old, has Trisomy 18 (also known as Edwards’ syndrome) and their experiences as a family have led Alison to become a passionate advocate to support other families, to raise awareness, and to defeat self-fulfilling prophecies.
Alison is a freelance education consultant and trainer, and is also a PhD student in Education. She lives in Devon and in her 'spare' time she enjoys running, swimming and musical theatre, as well as planning the many family holidays and trips that are the necessary antidote to hospital visits and medical emergencies.
Two mums talk about the importance of the language that health professionals use when talking to parents and parents-to-be about conditions like Down's syndrome, Edwards' syndrome and Patau's syndrome.