https://phescreening.blog.gov.uk/2019/07/16/have-your-say-on-the-newborn-blood-spot-programme-standards/

Have your say on the newborn blood spot programme standards

Over the past few months we’ve been carrying out a minor review of the 2017 newborn blood spot (NBS) standards. We’re now at the most important stage – the point where we ask for your views.

We’re launching a consultation on the proposed changes. This is your chance to have a say on whether they are clear and if there are any issues that we haven’t addressed.

Consultation

We welcome comments from:

  • all our stakeholders including health professionals
  • other providers and commissioners

If you represent an organisation or group of stakeholders, please share this blog with colleagues.

An online survey is now open and will close at midnight on 11 August 2019.

Person giving their feedback on the recommendations
We need your views

You’ll find a summary of general changes on the introduction page, followed by a page on each standard (text and questions). If only some of the standards are relevant to your role, you can skip the other pages.

If you would like to access the consultation in another format, please let us know by contacting phe.screeninghelpdesk@nhs.net.

Standards review

As a national programme, we have a responsibility to monitor the quality of NBS screening around the country. We do so by collecting and reporting data against a outlined set of standards and key performance indicators (KPIs).

By regularly reviewing these standards and KPIs, we can make sure they are fit for purpose, support screening processes and highlight any issues.

The next stages

We’ve been following the PHE Screening standards framework, which we blogged about back in March.

We will share the results of the consultation on GOV.UK, and aim to publish the revised standards in late 2019, ready for implementation in April 2020.

Thank you for your time.

PHE Screening blogs

PHE Screening blogs provide up to date news from all NHS screening programmes. You can register to receive updates direct to your inbox, so there’s no need to keep checking for new blogs. If you have any questions about this blog article, or about population screening in England, please contact the PHE screening helpdesk.

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1 comment

  1. Comment by Jane Raddats posted on

    Hello,
    I and other colleagues have questioned the helpfulness of offering early newborn screening for sickle cell disease to at risk couples (ie before the 5 day blood spot).
    The reasons for this are indeterminate results obtained, availability of suitably trained staff to go out and give the result at short notice, and early results do not confer any treatment benefit.
    Some colleagues also cite the possibility of interference with the bonding process at a very early stage.
    I would be interested to hear from other centres with their experience of offering this.

    Reply

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