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Jamili Miah

Jamili Miah joined Public Health England in September 2013. Jamili worked for the Diabetic Eye Screening Programme in Birmingham for three years as a screener and disease grader. She then moved to London to join the NHS Newborn Blood Spot Screening Programme Team as Project Support. Her work has included supporting the national roll out of expanded screening and, implementing the new blood spot quality guidelines across all English newborn screening laboratories. In addition Jamili has recently also joined the Sickle Cell and Thalassaemia Screening Programme.

We’re updating the clinical care standards for children with sickle cell disease and want your views

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A black woman and her 2 children on the cover of the sickle cell disease in childhood standards from 2010 with the words 'we want your views on the clinical care standards' on a purple background

We are working with the Sickle Cell Society to update the Sickle Cell Disease in Childhood: Standards and guidelines for clinical care 2nd edition. Please let us know what you think of the clinical care standards.

Application for funded place on genetic risk assessment and counselling course is now open!

Posted by: , Posted on: - Categories: NHS Sickle Cell and Thalassaemia Screening Programme
The outside of one of the buildings of King's College London

The NHS Sickle Cell and Thalassaemia Screening Programme is excited to offer 25 funded places on the King’s College London Genetic Risk Assessment and Counselling course. This year the 4-day course takes place on 9 May, 10 May, 13 June and 14 June 2019.

We’ve updated sickle cell and thalassaemia screening guidelines for counselling and referral for prenatal diagnosis

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We have updated our national guidance on counselling and referral for prenatal diagnosis for women and couples at risk of having a baby with sickle cell disease or thalassaemia major.

Are your blood spot samples taking too long to arrive at the screening lab?

Posted by: , Posted on: - Categories: NHS Newborn Blood Spot Screening Programme
A midwife taking a blood spot from baby's heel.

Newborn blood spot screening is a recommended routine part of the screening pathway for babies in England. The NHS Newborn Blood Spot Screening Programme (also known as the heel prick test) screens newborn babies for 9 rare but serious conditions. Babies …

Improving timeliness of antenatal screening for sickle cell and thalassaemia

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We, the sickle cell and thalassaemia (SCT) screening programme, are launching an exciting new project which aims to engage the public and service users. This will help improve how we deliver screening for sickle cell and thalassaemia.

Newborn blood spot (NBS) screening celebrates the first anniversary of programme expansion

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blood spot test being taken from a baby's foot

It’s been a year since the NHS newborn blood spot screening programme expanded screening for an additional 4 inherited metabolic diseases (IMDs): maple syrup urine disease (MSUD) isovaleric acidaemia (IVA) glutaric aciduria type 1 (GA1) homocystinuria (pyridoxine unresponsive) (HCU) We …

NHS screening programmes stand draws the crowds at RCM annual conference

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NHS blue adorned the walls of the International Centre in Telford, as this year’s Royal College of Midwives (RCM) annual conference set up camp in Shropshire. The ever popular two-day event attracted more than 1,000 professionals on 10-11 November. Leaving the …